I had another pretty bad retinal bleed again yesterday. Left eye again, and from the bottom again. Very similar to the last time.
Like last time, it started with a thread of blood that worked its way up into my vision. It was a slow bleed, but by this morning there was a lot of shit in there. A lot. There’s not much by way of opaque blobs, but it’s a really thick blur in my upper and central vision.
The other thing that sucks is that there seems to be a blob looming at the top now. I’m not sure if it’s yesterday’s blood that just collected up there (a lot of it made its way toward the upper outside corner), or if it’s another bleed. I seriously hope it’s the former and not the latter, because what I really don’t need right now is bleeding from both the top and the bottom of my eye.
The last one cleared up pretty quickly, so I can only hope for the same this time once it stops. It’s hard to tell if it’s stopped already and if things are still just moving around and settling in there or if it’s actually still bleeding.
What a mess.
And there’s just no way to know what’s causing it. I’m not having new growth/proliferation, my blood pressure is good, I’m not doing any heavy lifting. Basically I’m being an ideal retinopathy patient. So the best guess seems to still be that my vitreous is pulling on my retina and its weak vessels. And if there’s a way to stop that from happening (it happens as we age – retinopathy or not), I certainly haven’t heard of it.
I’ve talked Avastin with Dr. Ophtho in the past and we’ve always come to the conclusion that it’s not the best option, but that was before these last two more major bleeds, so I think it’s time to have that discussion again. Previously the bleeds were largely just an annoyance, and cleared up quickly, but this is getting beyond that. We’ll see….
So there it is.
And that’s all that this one-eyed blogger can type today.
**Edit: Since posting this, I received a couple of emails from another PWR (person with retinopathy…?) that helped explain some of what I was experiencing, and ease some of my fears about the bleeding happening in two different places. He’s not an ophtho, but what he describes is completely consistent with what I’m currently seeing, and really makes a lot of sense. His name is Jeff Parlier, and he’s given me permission to post his comments here. Maybe they will be as interesting to some of you as it was to me. Thanks Jeff!
Hello again Bethany. I just happened to click on your blog page and read your latest bad news. Damn I’m sorry you had an other big bleed. I know it just knocks you on your ass emotionally so hang in there.I pretty much have the same issues you are. You mentioned seeing a “blob” at the top of your vision. This is actually the bottom of the retina (visual image is flipped) so you likely have a good amount of blood settled at the bottom. I have so much from my last big bleed that when I tilt my head back (looking at the ceiling) I can see a dark pool of blood running, pretty freaky.…One thing I found out was bending over downward (such as stretching hamstrings) would suddenly cause some blood trickling down from the top of my vision when I rose back up. What was happening is the blood at the bottom of my eye was rushing upward as my head was bent over and re-mixing into the vitreous. I thought it was all new bleeding at the time but actually it was old, settled blood. Keep your head position in mind. You may also notice this happening when you tilt your head back (looking straight up at the sky) as old blood at the bottom will run to the back of your eye (macula area) and you might “see” it as trickling down from the top of your visual field.