About Me

My name is Bethany Rose.  I’m in my early 30s and I have had diabetes since I was three years old (1981).  I have had many years of less-than-ideal control over my diabetes, but something clicked for me about five years ago and I have been in pretty tight control ever since then.  (Not “non-diabetic” tight, but still tight.)  I’ve been pumping (Minimed Paradigm 522) since 2007, and using the continuous glucose monitoring system (CGMS) since 2008.  In 2007 I developed proliferative retinopathy and have had many laser treatments since then which stabilized the proliferation.  The exception to this was during my recent pregnancy when my left eye also experienced a retinal haemorrhage that is still leaking off and on today.

My first child, a daughter, was born in May 2009, and I’m currently pregnant with Baby #2, so the challenges of being both diabetic and pregnant are pretty fresh in my mind!  I live with my husband, my daughter and my dog (a rowdy black lab) in a house in a quiet neighbourhood.  By day I’m an accountant (I admit it, I like numbers – nerd alert!), but I love to write…hence this blog!  I also dabble in photography – emphasis on the word “dabble”.

This blog is about me and my life with Type 1 Diabetes (aka “D”).  Since my life doesn’t revolve around diabetes, sometimes the posts will be more about the “Me” than the “D”, but since this is a diabetes blog, after all, you’ll see plenty of D-related content.  It’s Me….With D! 

For more details about the above, check out my first two posts: Introduction and All About Retinopathy!

For more details about my experience with prengnacy and diabetes, check out Life as a Pregnant Diabetic!

Finally, I’d love to hear from you, so feel free to leave me comments or drop me a line at mewithd (at) gmail (dot) com!

7 responses to this post.

  1. Posted by Natal Rodrigues on April 14, 2010 at 11:05 pm

    Hi Bethany

    I’m so glad you are blogging again! I really missed your “Life as a Pregnant Diabetic” blog. Hope all is well with you and your family. Looking forward to reading in the future.

    Natal

    Reply

  2. Bethany: Welcome to the Diabetes Online Community! Glad to have stumbled across your blog after reading your guest blog over at Kerri’s Six spot… Planning to take some time to catch up on your past posts, but look forward to those down the road. Feel to stumble over to mine, if you care to. I’ll look forward to seeing you around the DOC!

    Reply

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  4. Posted by Joanne Niswander on October 27, 2011 at 8:47 pm

    Bethany, your mother just sent me the address to follow you during this next “adventure” of pregnancy. Hope all keeps going well. (It was so nice to have your parents here for a time – great visits!
    Great Aunt Joanne

    Reply

  5. Posted by Anais on January 27, 2012 at 10:16 pm

    Wow Bethany… it looks like we have lots in common! I am Anais and I am 27 years old. I was diagnosed with T1D in 1993 at the age of 9. I have used the Medtronic Minimed pump for 9 years already.I am also an accountant “by day”…hahaha… and a bit of a nerd too!
    I started to use the CGM when I became pregnant in exactly a year ago. I still use my CGM to this day! I love love love it!!! My sweet little princess is 3 months and she is just perfect!!!

    Unfortunately, I was diagnosed with proliferative retinopathy at the beginning of my pregnancy. :( bummer huh!!!

    My doctor wouldn’t tell me much (I guess not to worry me because he knows how much I do). I started with macular edema on my left eye. By the 3rd trimester both eyes had macular edema and my right also had new blood vessels forming. I was getting frequent Macugen shots during my pregnancy but no laser surgery. The doctor was hoping my retinopathy would stabilize one I gave birth and most of my hormones would settle down. Although, he would always tell me “it can get better or it can get worse”. Guess what? It got worse :(. I have macular edema and the blood vessels in both eyes. I got a hemorrhage on my left eye one month after birth. When that happened he gave me laser on both eyes. Then one week after laser I bled in the other eye just a bit. They are not actively bleeding and for the most part they seem to clear up pretty fast. But you know how it is…. I am terrified of waking up with new bleeding. It is torture!!!

    I am getting Macugen shots again to help the laser work faster. I believe I have a very good doctor.. (Harvard grad actually) but I hate that he always tells me that he does have a magic ball to tell me what I want to know.
    I know he can’t tell me exactly what is going to happen, but I feel I need some hope!!!
    I want to know that I have a good chance of being ok… of seeing my daughter grow.. it’s just so so hard! He never tells me that… he says he can’t know.
    Desperately!!! My sugar are super tight. I feel it is the only thing I can do to help.

    From what you have seen of people you know in our situation, do you think things can be ok?

    I was totally ruling out another pregnancy. I am so scared :(.
    I am so glad I found you. Not that I wish this on anyone, but it’s comforting to know that there are strong women out there like you with retinopathy. Hopefully, you can give me your insight. I would really appreciate it. Just by reading your blog…. I already I feel like I have some hope! Thanks so much! – Anais

    Reply

    • Hi Anais! Thanks for writing. It does sound like we have a lot in common! I do definitely know of folks who have struggled with proliferative retinopathy that has later stabilized. Some credit it to the laser treatments or injections, and some credit it to better diabetes control. (Obviously each situation is different.) I go on with my own life assuming that things can (and will) be okay, but I also understand that I have to be proactive to help that happen – seeing my ophtho frequently, tightly controlling my diabetes, taking my doctor’s advice not to lift anything heavy or do anything else to increase the pressure to my eyes.

      I know there are aspects of this disease that we can’t control, but I’ve come to a point where I want to control everything that I can about it and then just live the life I want to live, rather than worrying about what might or might happen that I can’t control. (Often easier said than done.)

      I was quite sure I (and my husband) had ruled out another pregnancy as well, but our desire to have another child ended up outweighing our fear of the risks (which are calculated and which my ophtho has advised are low at this point). It just goes to show how much we want this next child, I guess – based on how much our first one has enriched our lives. But that’s just us…everyone has a different take on things. Good luck with your eyes, and with your new baby! Congratulations!

      Reply

      • Posted by Anais on January 31, 2012 at 10:49 pm

        Thanks Bethany! Your words mean alot to me. I really don’t know anyone like us and sometimes I wish I had someone to talk to that truly understands me. I was going back to read some of your older posts and it’s just to funny how I can relate so much. Over correcting all the time because like you said we “have a feast”… hahaha!

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